Saturday, February 16, 2008

Understanding (or how work has saved my life)

So, my mom was terribly ill a number of years ago. So ill that the doctors told us she wouldn't live. My mom is a tough lady and proved them wrong. My relationship with my mom has been a bit difficult. We both love each other, but she's an alcoholic, and like most alcoholics, drinking is usually very high up on her priority list.

So, anyway, mom hasn't been the same since that bout of illness. Since she was ill, she barely leaves her room. She says everything makes her too tired. Now, she doesn't work, she has no real obligations, and most days sleeps until noon (or later) gets up to her chair and watches tv. One of the reasons this frustrates me is that she's too old for her life to be that small.

So, anyway, since January, and I've noticed it more recently, I've had noticable muscle weakness, which I'm pretty certain is due to 6 months on prednisone. Steroid induced myopathy or something. Like... I have a hard time hauling my laptop around because it feels impossibly heavy. Like I dropped my laptop on the ground because my hands weren't strong enough to hold it. Like my legs get tired walking up a few stairs (before I actually get out of breath). It's actually quite annoying. It's also exhausting. I think that having reasonable muscle strength seves as a buffer against the fatigue that is part of my job. I think that having reasonable muscle strength is a buffer against a lot of fatigue. Mostly, all I want to do is rest. Not that I'm not interested in stuff. I'm enjoying the martial arts classes. Work has been interesting. I'm just exhausted all the time.

Well, I think that the combination of deconditioning and steroid myopathy is probably nothing compared to what people recovering from serious illness suffer. My mother, for example, I think never recovered from her deconditioning. Her illness occurred just after her separation from my dad, she was grieving and depressed, and couldn't find the energy to make the extra effort it takes to build muscles back. So, her body only reconditioned itself to her daily activities (sitting in a chair), and because of that, she's never had the energy to do more. And since then, her health has been worse.

One of the things that will save me is my job. My body will recondition to at least my daily activities, which include running up and down stairs (or trudging as I am today), carrying things, exercising, etc. I worry that I may not have the strength to pull a baby out, but there are chief residents and attendings (at least privates) in the hospital, so I could get help if I needed it.

But if I didn't have a job, I can see how it would be so easy just to do what I felt like doing, and that is, nothing. So, in that way, my job is a bit of a buffer against my illness. If I didn't have a job (especially if you were to throw in some depression at an inopportune time), I could easily end up like my mom, living between my chair and my bed, and having to plan a trip to the mall weeks in advance. It sort of has given me just a tiny glimpse (because I wasn't very sick) of what it is really like to recover from a serious illness with a long hospital stay, or even for our patients who need to recover from a really long time on bedrest during their pregnancies for various complications.

As it is, I'm doing ok. I'm tired, and I feel weak, but I can do what I need to do and a lot of what I want to do, although I am a little annoyed at being too tired to go to martial arts on Thursday. My internist tells me this should begin to get better once I'm off the steroids for 3-4 weeks, and to avoid a negative nitrogen (i.e. protein) balance (my carb-lust while on the prednisone may have contributed to this because I think that there were many times I didn't eat protein because I was eating carbs).

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20 Comments:

At 10:19 PM, Blogger Lisa b said...

I got a parasite infection on a field study my last year of undergrad and it took me almost a year to recover, same thing for both my pregnancies.
I think you are right that depression and physical illness feed each other and I hope you are feeling up to your class soon.

 
At 11:09 PM, Anonymous Anonymous said...

Just about any illness that puts you down for any time will make you weak. Even if you're 18. I had a bacterial infection when my kids were little--nothing like as serious as your problem, only a couple days in the hosp. It still took 6 months to feel normal. All that time everytime a patient complained "I'm tired" a little voice in my head would snarl "oh yeah? move over!" It's too bad insurance doesn't cover rehab for the nonseniors--altho the martial arts should fit the bill!

 
At 12:32 AM, Anonymous Fat Doctor said...

Your youth and desire to get better will save you and make you strong again.

I'm amazed that you found energy to join a martial arts class when you've been going through such physical hell.

Will keep you in my prayers, for whatever that's worth.

 
At 6:57 AM, Blogger IVENTBYBLOGGING said...

Hi Midwife! I saw you over at Every One Needs Therapy and thought I'd check u out. Ur amazing. I don't know how u found time to blog-in depth- let alone take martial arts class in addition to Dr. duties. U go girl :)

I'm adding u to my blogroll-I'm not a dr. Just a service rep for a major telcom co :)

have a great day,
bria

 
At 9:15 AM, Blogger Katie! said...

I have never heard this argument "defending" doctors' schedules, but I feel lightened by it. As a medical student, wife of a resident, and daughter of a surgeon, I know only in theory about the demanding schedule and lifestyle of physicians; I know about it from the family's perspective. And it's my biggest worry upon entering this profession - that I won't be able to handle a lifetime worth of long days that stretch into nights and the constant high stress.

Reading this post has reassured me, as I can totally get behind this. Physical strength and well-being means a lot to me, and if being a physician and keeping wacko hours helps me stay active and keyed into my body, then sign me up.

Thanks for your thoughts. Sending you good, strong wishes!

 
At 9:57 AM, Blogger rlbates said...

Was your mom offered rehab after her long illness?

Nice post! Hope you stick with the "conditioning".

 
At 11:18 AM, Blogger The MSILF said...

I've been having some health shit luck of my own lately, and I've noticed the same thing...it is ten times as hard to do all the shit I have to, but if I didn't have to, I think it would be a lot worse.

Glad you're getting off the 'roids!

 
At 2:10 PM, Blogger TBTAM said...

I so agree with you! Sometimes I hear other complain about how they feel and what they don't do, and I know that it is because I have to get up everyday and get my sorry ass to the office, and can't stop while I am there that I am able to function at the level I do.

Work has saved me from depression, too. Hard to focus on your own problems when others have so many that are worse.

Best to you.

 
At 7:50 PM, Blogger therapydoc said...

Youth on your side, right?

 
At 11:26 PM, Anonymous Anonymous said...

Thank you for this blog entry. It was exactly what I needed to hear, exactly when I needed to hear it.

 
At 7:47 PM, Blogger Java said...

Hi there,
I enjoy your blog after finding it today via another, I enjoy what I read here and learning too.
I'll be back, Perth Autralia regards.

 
At 8:31 PM, Anonymous Anonymous said...

Ah, brilliant, I think you've just helped me narrow down why I've been feeling so weak lately. I'm in marathon training and I had an extreme case of full-body hives after a half marathon a few months ago for which I got both shots and oral prednisone. Since then I've had big muscle aches. I just though I was slacking on my training but I think steroid myopathy was probably what has been going on. Thank you and I hope you feel better too.

P.S.--your cats are delightful. I have an old fat cat too.

 
At 6:37 PM, Anonymous dr. bean said...

I'm hoping you've gotten a second GI opinion by now... just to get a fresh view on the options.

 
At 11:02 PM, Blogger Tory said...

I'm no dr., but I am having the same trouble as your mother. My dr. is looking into fybromyalgia or chronic fatique syndrome, both of which can come on after trauma, either illness or even a divorce. Mine started after I left my last hubby.
My life seems to be getting smaller as well, and it can be very depressing at times.
Take care
Tory

 
At 4:01 AM, Blogger izzywizzy said...

Your post has reminded me how important it is to make sure you stay healthy and well yourself while your working! I just finished my obs and gyn rotation and loved it but i'm a bit of wreck now...too much junk on the go coupled with long nights etc i think which i'm sure you know all to well! Wishing you all the best in building your strength back up! isobel

 
At 12:37 PM, Blogger Deb said...

Life without purpose leaves us all feeling nothing. I can so relate to what you mean here.

 
At 11:25 AM, Anonymous Michael D. Miller, MD said...

Hi - I found this post very inspiring, and I think many people can relate to your experience and reading things like this should help people understand and push through similar situations. (And I agree about the other comment concerning offering rehab/PT/OT type services to your Mom.)

I also wanted to introduce myself since I’ve started a new blog (www.healthpolcom.com/blog) about health policy topics – with an emphasis on the intersection of clinical and economic factors in the US healthcare system. From looking at your blog, I think you may find some of my posts interesting.

Also, I’ve put your blog on my “blogroll” -- and if you want to put my blog on your site, that would be great too.

Thanks & Best Wishes, Mike

 
At 6:10 AM, Blogger human carvery said...

I had major surgery last year, what a slow recovery I am on, I used to go to the gym 6 days a week, scary how fast my fitness has left, which bits wobble even though the scales go down! I was ust checking in on you & your wii, I gave in & bought one ready for wii fit, I hope it is as good as I want it to be!

 
At 10:27 PM, Blogger Midwife with a Knife said...

lisa b: Those nasty parasites totally take a lot out of you!

anon: I know what you mean. Sometimes I envy the patients under general anesthesia, because at least they're having a nap!

fd: The prayers are appreciated. I don't know that it's physical hell, I've certainly had plenty of patients sicker. It's more like a chronic physical annoyance. ;)

ivent: Thanks!

rlbates: My mom had inpatient and home rehab, but it only works if you're motivated enough to do the exercises.

msilf: I hope you feel better soon. I've been off the 'roids since 1/28. :)

tbtam: I know. And I think that when people get on chronic disability, they go downhill really fast, in general. It's good to have something to do. Both for physical and mental health.

katie: I'm not defending physicians' wacko hours, I'm saying it's really good to have a job you love to get you out of bed in the morning. People need work.

therapydoc: I'm 33 (but some days feel like I'm 53). My body may have exhausted its grace period of youth. But yeah, relative to people who are actually old, I'm pretty young.

anon1: glad to help!

Java: glad you like the blog! :)

anon2: If you have a medical problem, see your doctor. For the record, steroid myopathy happens after prolonged (months!) exposure to high-dose steroids. And thanks. My cats are delightful!

dr. bean: haven't gotten around to it. I will though. I figure that this period between flares is probably the perfect time.

tory: take care of yourself, and fight that shrinking world. Go shopping. Go for a walk, daily. Go volunteer. Just do stuff!

izzy: I know what you're talking about. It's so hard to learn to work in a sustainable manner in medicine.

deb: exactly. Purpose and work are very important for health!

Mike: I'll totally check out the blog. :) I'll link to it too, as soon as I get around to updating my links.

human carvery: I know what you mean. It's amazing how quickly fitness decays.

 
At 11:04 PM, Anonymous Essiewb said...

Um, don't forget to get a CPK in case it's not steroid myopathy but a coexistent polymyositis. It happens.

 

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